Documentary Photographer
 Having a disease that is not visible it makes you often feel misunderstood.

Rare Diseases, Rare Lives / Italy 2017

A RARE DISEASE IS MOSTLY DEFINED AS ONE AFFECTING ONE PERSON OR LESS IN EVERY 2000. IT IS ESTIMATED THAT THERE ARE SOMEWHERE BETWEEN 8,000 AND 9,000 RARE DISEASES. JUST IN EUROPE IS ESTIMATED THAT APPROXIMATELY 30 MILLION PEOPLE SUFFER FROM A RARE DISEASE.

THIS PROJECT HAS BEEN MADE IN PARTNERSHIP WITH UNIAMO - FEDERAZIONE ITALIANA MALATTIE RARE ONLUS AND THANKS TO THE SPONSORSHIP OF SANOFI GENZYME.

 Having a disease that is not visible it makes you often feel misunderstood.

Having a disease that is not visible it makes you often feel misunderstood.

02_DSC0890.jpg
03_DSC2678.jpg
04_DSC3256.jpg
05_DSC4585.jpg
06_DSC4023.jpg
 Sebastian has been forced to many overnight journeys to the hospital. Sometimes real journeys of hope due to his critical condition.

Sebastian has been forced to many overnight journeys to the hospital. Sometimes real journeys of hope due to his critical condition.

09_DSC1035.jpg
10_DSC4966.jpg
 Simone suffers from SMA (Spinal muscular atrophy). When he was younger, Simone didn’t accept so easily plaster casts used to realize specifically shaped braces for him, but growing up, it has become natural.

Simone suffers from SMA (Spinal muscular atrophy). When he was younger, Simone didn’t accept so easily plaster casts used to realize specifically shaped braces for him, but growing up, it has become natural.

12_DSC2953.jpg
14_DSC3168.jpg
_DSC2364.jpg
17_DSC2900.jpg
16_DSC6587.jpg
 A son is always a special gift and Luca is a surprise in every sense. He opened for us the door of the disabled people’s world, he let us know a different way of living.

A son is always a special gift and Luca is a surprise in every sense. He opened for us the door of the disabled people’s world, he let us know a different way of living.

19_DSC3513.jpg
20_DSC5893.jpg
21_DSC2194.jpg
07_DSC5305.jpg
_DSC3546.jpg